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Breast Cancer Genetics Usability Test


The purpose of this project is to develop and test a web-delivered, tailored decision aid for women at risk for breast and ovarian cancer. Existing educational materials are refined then offered in an interactive website featuring greater personalization of risk information, using validated risk communication techniques in a patient-friendly Web-based application.

Such technologies are needed to expand the reach and improve the cost- effectiveness of breast cancer genetic services and are part of a growing movement within clinical care to provide validated patient decision aids.


Aim 1. Use feedback from both patients and a multidisciplinary panel of experts in the field to refine our existing educational website for women considering BRCA 1/2 genetic testing.

Aim 2. Use a small RCT to pilot test our educational website with a sample of women recruited from the University of Michigan (U-M) Breast and Ovarian Cancer Risk Evaluation Program.

Aim 3. Use results from Aims 1-2 to prepare an R01 application to conduct a larger, multi-site RCT of the study website (vs. usual care) for increasing patients' knowledge and decisional satisfaction, reducing patient cancer-related worry, and reducing provider burden.


Forty women scheduled for a visit with the University of Michigan Breast and Ovarian Cancer Risk Evaluation Program

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