Project Overview +

Breast cancer survivors often experience challenges as they transition from treatment to survivorship. The Survivorship Resource Room offers informational, emotional, and instrumental support during this transition.

Aims +

Aim 1. Develop a web-based program to address survivors' concerns about common post-treatment issues.

Aim 2. Help survivors plan for post-treatment physician visits

Aim 3. Assess participant satisfaction receiving post-treatment information in this setting

Participants +

Breast cancer survivors, treated at the University of Michigan, attending their transition visit during the study period

Intervention +

The intervention includes a dedicated 'transition visit' and tailored web-based support. It provides informational support and strategies for self-management of long-term effects of cancer and its treatment after completion of multimodality breast cancer treatment.

The transition visit (1) provides a treatment summary and survivorship care plan as recommended by the American Society of Clinical Oncology, (2) develops appropriate strategies and referrals to address treatment sequelae, (3) promotes self-management of treatment side effects and health promotion skills, including coordination of care with the multispecialty team of cancer providers, and (4) promotes physical, psychological, social, and spiritual well being.

Findings +

Preliminary Findings:

The investigative team investigated the feasibility of providing survivorship information via a web-based portal to patients completing multimodality adjuvant therapy for primary breast cancer. A total of 26 patients who had received surgery and/or systemic adjuvant therapy at the University of Michigan enrolled in the study. Use of the website varied amongst participants. Of the 26 enrolled patients, 7 never accessed the site (one had an early metastatic recurrence and died soon after enrollment), 5 logged in 1 time, 10 logged in 2 - 4 times, 4 logged in 5 or more times (maximum 16 times). The number of pages viewed per day ranged from 1 to 73 (mean 23). The content most often viewed included lymphedema prevention, weight management, depression, nutrition after cancer, and "questions to ask the doctor." Additional qualitative interviews are being collected at this time to gain additional information about use and satisfaction of the website.

Survivorship Resource Room

09/01/2008 - 08/31/2010

Sponsor(s)

National Cancer Institute

Principal Investigator:

Jennifer J. Griggs, MD, MPH

Co-Investigator(s):

Brian Zikmund-Fisher, PhD